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Information for research participants

Contact

Håkan Johansson
Professor & Principal Investigator (PI)
School of Social Work
Lund University

Mobile: +46 (0)70 849 48 67
Phone: +46 (0)46 222 09 88
Email: hakan [dot] johansson [at] soch [dot] lu [dot] se (hakan[dot]johansson[at]soch[dot]lu[dot]se)

The project is approved by the Swedish Ethics Agency (Etikprövningsmyndigheten, www.epn.se) and the Swedish Regional Ethics Board (avdelning 3, Lund) (see Dnr 2019-04992, 2019-04400 and 2018/852). The person responsible is Professor Håkan Johansson, School of Social Work, Lund University, Sweden, + 46 46 2220988, Hakan [dot] Johansson [at] soch [dot] lu [dot] se (Hakan[dot]Johansson[at]soch[dot]lu[dot]se).

Your personal data

If you would like to gain access to your personal data you can contact Professor Håkan Johansson (see contact details above) or any of the participating researchers. You can also contact Lund University’s Data Protection Officer via e-mail, dataskyddsombud [at] lu [dot] se (dataskyddsombud[at]lu[dot]se).

In cases of dissatisfaction with treatment of personal data, you have the right to file formal complaints to the Swedish Data Protection Authority. For further information, see https://www.datainspektionen.se/. Data collected in the research program will furthermore be stored in Lund University’s safe data storage system (LUSEC). Unauthorized actors will not have access to the data. Research data is furthermore archived in accordance with Lund University’s archive directive.

Lund University is responsible for your personal data. In an accordance with the EU’s General Data Protection Regulation you have the right, free of charge, to get access to your personal data and get potential errors corrected. You can also demand personal data to be erased or use of personal data to be limited.

Results

You will be able to get information on the study’s results and output in several ways. We will present our results at scientific conferences. We will also present and disseminate our results in cooperation with stakeholders, e.g. civil society organizations or public authorities with an interest into civil society affairs. These presentations will provide you with opportunities to get information on the study’s results. You as a participant has no obligation to stay informed about the study’s results.

General information about the project, its progress and results will be posted on this website.